Thursday, July 30, 2009
Friday, July 31st, 2009Thursday, July 30, 2009
What happened to Wednesday? I missed Wednesday - it is Thursday! Jane had to remind me what we did yesterday. Dawn and the grandgirls left about 9 a.m. and we spent the remainder of the day packing all of the stuff we brought up here to Seattle in suitcases and boxes etc. We are anxious to get home! Can you tell? I felt pretty good all day as my left shoulder seems to be getting just a little better, and I am learning how to use my right shoulder without hurting it. I did get a headache again, but today the doctor said that happens to people whose immune system is low when there is a lot of pollution in the air - which there is right now.
Today, Thursday, was quite an informative day. After next week I will be going back to the oncologist I have had since 2005 in Puyallup. The doctors here said I need to have him send me to an orthopedist as my right shoulder has damage etc. that needs to have a speciality look at and determine what to do - yet with the knowledge I have just gone through 2 stem cell transplants, so my system may not be able to take any surgery right now. It is in the Lord Jesus’ hands!
Also found out that there is more evidence that Dick’s stem cells (actually called T-cell) are being reduced in number right now, so they are upping one of my medicines to help his T-cells and slow down mine (which are actually my twin brother - Dave’s) T-cells. Apparently my brothers are doing some fighting and Dave’s has been in my system not only a month before Dick’s but also Dave’s were put in my in June of 2006. My T-cells don’t actually exist any more. So they are slowing Dave’s down so Dick’s can take dominance and will then fight the multiple myeloma. They said the multiple myeloma cells are not spreading right now, but are getting more abundant in my lower back - pelvic area. One of the MRI’s determined that, so they have also decided to put me, as of tomorrow on Velcade without steroids, and a milder dose than I had the two times it was used before: Feb - April in 2006 and a couple months before I came to SCCA for treatment. Jane’s comment after we left the doctor was “that was sure a lot of bad news.” I told her I didn’t think it was particularly bad news, just news of what is happening. God is in control and we knew this could take up to a year or more and they had already been talking about using Velcade. So it was no real surprise.
We had our car packed with almost everything we brought up here that was still here thinking we would leave right after the appointments. That didn’t work, but that is okay. They wanted to start the first dose of Velcade tomorrow and take another blood draw before taking it, so they could compare that sample to others they will be taking later. It is a drip that takes about 45 minutes, which, I think they said, would be given twice a month. Oh, also next week after we return from our family reunion they will be taking out the Hickman catheter, since my oncologist in Puyallup uses the port - so I don’t need both and I already have the port. Then I won’t have the two tubes sticking out of my chest!
I know I can trust God. He is good and He loves me. The same applies to you!
DAN
Jer. 16 :19 O Lord, my strength and my fortress, my refuge in time of distress…
:17 But blessed is the man who trusts in the Lord. He will be like a tree planted by the water that sends out its roots by the stream. It does not fear when heat comes; It has no worries in a year of drought and never fails to bear fruit. :14 Heal me, O Lord, and I will be healed; save me and I will be saved, for you are the one I praise.