Nov. 2 -3 Monday - Tuesday
Yesterday went pretty well with all the drugs I had pumped into me (infused as they all it).
It was suggested that since 3 of the drugs say a side effect is nausea and one is a steroid (that gets me on edge - talks to much and is not always nice to people including Jane) I decided to take their advice about nausea pills too.
For those of you who enjoy the details - here they are:
Monday I had Velcade 1.9 mg; cisplatin 9.3 mg; adriamyin 14 mg; cytoxin 558 mg; and etopside (VP16) 56 mg put in me by infusion. These were all part of the chemotherapy.
Also it included 500 ml and 250 ml of sodium choloride (salt water). Also I had 40 mg of Decadron (dexamethasone) - a steroid.
Tuesday I am having the same without the Velcade. and Decadron.
Wednesday, I will have what I had on Tuesday, so will not have the Velcade or Decadron.
Thursday, I will again have what I had on Monday so it will include the Velcade and Decadrom.
At home I am taking, by pill Revlimid 5 mg Monday and the next 13 days after that for a total of 14 days. This is what in the past gave me suck skin problems. This dose is much lower so we pray my skin is not bothered by it.
Then I will have two weeks off everything except, I believe, the Velcade and Decadron which will be infused every Monday and Thursday.
After those 4 weeks I will start over again with the 4 days of the “hard” chemotherapy.
I don’t yet know if I will keep going on the Revlimid again or not. It probably depends on if this treatment, at that point, has dropped the amount of multiple myeloma cancer or not.
If it has gone to the level the doctors want sometime soon after that my brother, Dick, will be asked to give some more stem cells to me, but without the shots that caused him so much trouble before.
Of course I still have all the other medications I have to take at home - morning, lunch, dinner and bedtime. No need to give the names of all of them, but I did get to stop one on November 1. I also now am to take a nausea pill at 3 p.m., the Revelimid pill at 5 p.m, another of the same type of nausea pill at 7 p.m. and then a different nausea pill at bedtime that also will make me sleepy, which last night helped counter the affects of the steroid. Previously, when I took the dexamethasone (decadron) I would be wired all night and get about 2 hours of sleep. I slept through all night last night - Praise the Lord!
I did eat well, just not quite as much and I am feeling pretty well. I still am not able to walk at a slow sleep - it has to be slower than slow - or I get strong gas in my upper intesting and stomach which make my arms and shoulders ache and can even make me throw up. That almost happened this morning. I was told in Seattle that nothing can be done about that until I am off all the drugs I am now taking. So I exercise and walk very, very slow. My legs are feeling strong from the exercises I learned at SCCA, but I don’t get much opportunity to go as fast as my legs want to go because of the stomach gas stuff. My shoulders keep doing better as well.
I am allowed to drive myself places, but I can’t be in crowds - so the doctor said church is out for now, but if I grocery shop I have to go when few are there, and I can go to the fitness center when few are there and I wear gloves and wash my hands afterward.
So things are going well!
On the way home after treatment some stuff didn’t go so well. I had to walk very, very slow. Had a drink of water to take the calcium pill I am suppose to take at noon - it was after 3:30 p.m. I went slowly to the the elevator and a slow walk to the truck. But that short distance upset my stomach and I just had time to get out to the front of the truck and throw up. Had to sit about 10 minutes before I felt good enough to drive. Felt better going home, but when I got home, got out of the truck and into the house, it happened again! Glad to be next to one of our bathrooms. Then as long as I did little or very slow walking just in our family room and kitchen. Did good, however, at dinner and after but have moving very slowly at everything. It may have been partially because I couldn’t take the 3 p.m nausea pill, but I have now taken the 7 p.m. one and will take the 9 p.m. nausea pill also.
This next story is well worth reading!
DAN
Airport Cookies
A young lady was waiting for her flight in the boarding room of a big airport. As she would need to wait many hours, she decided to buy a book to spend her time. She also bought a packet of cookies. She sat down in an armchair, in the VIP room of the airport, to rest and read in peace. Beside the armchair where the packet of cookies lay, a man sat down in the next seat, opened his magazine and started reading. When she took out the first cookie, the man took one also. She just thought” “What a nerve! If I was in the mood I would punch him for daring!” For each cookie she took, the man took one too. This was infuriating her but she didn’t want to cause a scene.
Only one cookie remained, she thought” “Ah… What this abusive man do now?”
Then, the man taking the last cookie, divided it into half, giving her one half. Ah! That was too much! She was much too angry now!
In a huff, she took her book, her things and stormed to the boarding place. When she sat down in her seat, inside the plane, she looked into her purse to take her eyeglasses, and, to her surprise, her packet of cookies was there, untouched, unopened! She fel so ashamed!! She realized that she was wrong … She had forgotten that her cookies were kept in her purse. The man had divided his cookies with her, without feeling angered or bitter . . . while she had been very angry, thinking that she was dividing her cookies with him. And now there was no chance to explain herself…not to apologize.
The Moral of the Story
There are 4 things that you cannot recover:
the stone ……………after the throw!
the word……………..after it’s said!
the occasion………..after the loss!
the time………………after it’s gone!